What is Motor Neurone Disease?
Motor Neurone Disease (MND) is the name given to a group of similar illnesses. These illnesses all cause damage to the nerves called motor neurones. These are the nerves that carry the messages which control our muscles. This can show up in many different ways. Depending on which muscles are affected this early weakness could perhaps cause you trouble walking or lifting your arms. In about one case in four, it can start in the muscles we use to speak, chew and swallow; this can cause slurred speech and eating difficulties for some people.
There are many different kinds of problems that motor neurone disease can cause. However, it is important to remember that not everyone is affected in the same way.
The damage caused by MND is progressive. This means that the damage gets worse with time. As the disease progresses any affected muscles will weaken until, perhaps, the muscle can no longer do its job. As well as this, the effects of the disease will normally spread to other muscles in the same area.
Making a diagnosis of motor neurone disease can be a complex and lengthy process and should be done by a consultant neurologist. When a diagnosis of Moto Neurone Disease is made the neurologist will refer you to MND Scotland Specialist Care Service - MND Specia which works apart
MND Scotland funds a Care Team which serves the whole of Scotland. They are based in four hospitals at Glasgow, Edinburgh, Dundee, and Aberdeen. These professionals, who are specially trained to work with people with MND and their families, visit newly diagnosed patients to offer support and to assess their needs. As trained clinical specialists, Care Team members liaise with health and social care professionals to ensure the best possible care for each individual. These professionals can include Occupational Therapists, Nutritionists, and Speech Therapists.
If you have been recently diagnosed with Motor Neurone Disease you can choose to recieve support from a member of MND Scotland’s Care Team. Your neurologist should refer you on to the care team who will then contact you, however there can be delays in this process. If you wish to speak to a member of the care team call 0141 945 1077.